Cystic Fibrosis Parent and Patient Advisory Council

CHKD's Cystic Fibrosis Parent and Patient Advisory Council, or CF PPAC for short, started in 2008, and we are still going strong. We are a group of CF patients and parents of children diagnosed with CF, with a mission to help improve the care of local CF families.

We want all CF families to know they are never alone; we have walked in their shoes, know their concerns, and understand how they are feeling.

The purpose of the CF PPAC is to work together with clinic staff to advance the practice of family-centered care. Family-centered care reflects the philosophy that healthcare providers and families are partners working together to improve the quality of care for patients.  We are here to provide help and hope to our CF community.

With all the things we are trying to accomplish each year, PPAC could really benefit from your creative ideas and any help you can provide. We meet virtually once a month (in the evenings) to talk about new and fun ways to help our CF community. You may volunteer a little or a lot, or just be the voice on our monthly calls to help us continue to provide support for all our CF Families.  See our activities and events below. 

Please consider joining us. We would love for you to be a part of our team. Reach out to CFPPAC@chkd.org or talk to Monica Ford-Cutrell if you are interested or would like more information.

CF Family Events

CFF Great Strides Walk

Participate and Volunteer each Spring in the Hampton Roads Great Strides Walk to engage with our community, have fun, and to raise awareness and dollars to support the mission of the Cystic Fibrosis Foundation to find a cure for CF.

Beers and Cheers

A relaxing and fun Brewery event to honor and care for those who love and care for our young CF patients.  Great food and drinks, conversation, and connecting with others who are caring for people with CF.

Act of Kindness (AOK) Pal

The “AOK Pal” program is a way to help CF patients connect and interact with others their own age that have similar issues and challenges; a way to foster a new friendship, provide support, and reduce feelings of isolation.

New Patient Welcome Packets

Informational Welcome Packets for newly diagnosed and new patients to our clinic and the CF Community at large.

Hospitalized Patient Activity Packets

In-patient fun Activity Packets to bust boredom during an inpatient admission. Cool games and toys to provide a little fun during a not-so-fun time.

Cystic Fibrosis Foundation (CFF) Experience of Care Champions

Monitor and analyze CFF patient surveys and provide feedback to our clinic to ensure our concerns are being heard and continually strive for improving the patient experience.