Multidisciplinary Clinic for Patients with Spina Bifida
Meet Our Care Team
Contact Our Spina Bifida Clinic
Phone: (757) 668-6567
Email: leslie.daley@chkd.org
Related Services
- Care Connection for Children
- Neurosurgery
- Orthopedic Surgery and Sports Medicine
- Physical Medicine and Rehabilitation
- Urology
Billing
At our spina bifida clinic, families can see all specialists, complete testing and receive a variety of services during one appointment. Our physicians are specially trained and highly skilled in treating patients with spina bifida. We also have a registered nurse that serves as the program coordinator dedicated to guiding our families through our clinic.
Clinic meets on the first Wednesday of every month, from 8:30 a.m. to 3 p.m., on the 5th floor of the hospital at 601 Children's Lane in Norfolk by appointment only.
On the day of clinic, please bring the following:
- Insurance cards,
- All braces and splints
- Extra continence supplies
- A list of all medications and dosages
Some patients may be scheduled for diagnostic testing in the radiology department the morning of the clinic. Children with spina bifida may be referred for any of the following tests: CT Scan, MRI, ultrasound, urodynamic study and/or VCUG. Our program coordinator will work with you to ensure all required testing is set up prior to your appointment.
Spina bifida
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Myelomeningocele - This is the most severe type of spina bifida in which a baby is born with a gap in the bones of the spine. This can cause moderate to severe disabilities, such as full or partial paralysis below the spinal opening, bladder, and bowel dysfunction.
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Meningocele - A birth defect in which the baby's spinal cord does not develop properly. Symptoms include an abnormal tuft of hair, a birthmark, or protruding spinal cord tissue, which may cause physical disabilities.
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Lipomyeloemeningocele - A rare defect that causes a fatty mass under the skin that is connected to the end of the spinal cord. This can tether or pull on the spinal cord as the child grows, causing neurologic problems including weakness, bladder, and bowel dysfunction.
Support and Education
External Support
Spina Bifida Association
Family Voices
Education
Virginia Dept. of Education: A Parent's Guide to Special Education
Wright's Law
Transitioning to Adulthood
The Virginia Department of Rehabilitative Services:
DARS Long Term Rehabilitation Case Management Services (LTRCM) (virginia.gov)
Portsmouth Office
601 Port Centre Pkwy, Ste 100
Portsmouth, VA 23704
Voice/TTY (757) 686-5014
Richmond – Central Office
8004 Franklin Farms Drive
Richmond, VA 23229
Voice (804) 662-7000
TTY (800) 464-9950
Fishersville Office
50 Andrew Russell Lane, Ste A
Fishersville, VA 22939
Voice/TTY (540) 332-7485
DARS Independent Living Services (virginia.gov)
Centers for Independent Living (CILs) provide services to individuals with significant disabilities as well as to the local community at large. CILs provide the following core services to individuals:
- Advocacy
- Peer Counseling
- Independent Living Skills Training
- Information and Referral; and
- Transition Services for youth, people living in institutions, and services that prevent institutionalization
Kevin Koziol
Director of Independent Living
Virginia Department for Aging and Rehabilitative Services
Voice: 804-662-7078; 800-552-5019 (Toll Free)
TTY: 800-464-9950
Email: Kevin.Koziol@dars.virginia.gov
North Carolina Department of Health and Human Services
Find a local office listing at the following link: NC DHHS: Employment and Independence for People with Disabilities.